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He would buy
new clothes every day and throw them
into the sea.
Rohan Sharma, a civil engineer in Dubai,
was slowly unraveling. He would invite
people over and then not open the door
to them. He heard voices talking to
him all the time. He believed people
were following him, trying to poison
his food. He lost his job and was completely
unable to function.
“My mother and the other elders
in our family thought that some kalian
jihad has been done over him,”
recalls his daughter Sheela, who was
only 8 years old at that time.
“So we left Dubai in a real crisis
and came back to India. My father was
taken to fakir babas and tantriks to
remove the kala jaadu (black magic).
We donated lots of money, gold and silver
to temples for his recovery.”
Schizophrenia was the terrible word
that nobody was willing to acknowledge
even as the family’s life became
a living hell. Recalls Sheela, “As
a person who witnessed all this, I really
felt all the shame and embarrassment
as a child, seeing my father’s
symptoms. I felt why did God have to
make my family like this and was always
praying for some miracles.” |
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Sunita Gupta is only 14, but she’s
had enough of life.
She has everything, the best education,
a great family, and all the material
things and is studying in one of the
most prestigious high schools. Yet,
she’s attempted suicide twice
by cutting herself. Her family was too
embarrassed to talk about it and could
not understand how their daughter could
be depressed and suicidal.
Arif Khan, who is 7, was having serrious
problems in school. He was unable to
sit in one place and would distract
other children. He would not complete
his class work and had a hard time doing
his homework. His parents were tired
of the constant complaints from the
school and would blame Arif. They would
constantly push him to do more work,
call him names and not allow him to
play.
Concerned parents, who would normally
rush to the doctor if their child had
a cough or a cold, stonewall when they
suspect the need for a psychiatrist.
And so they didn’t even come to
know that the problem might be Attention
Deficit Disorder, and that it is treatable.
Though their names have been changed
to protect their identities, Rohan,
Sunita and Arif are all very real people,
living in New York.
Mental illness is the big, dark secret
that nobody wants to examine in the
sunlight. Feeling alone and isolated,
families live on the cusp of sadness
and despair, not knowing that help is
out there for them.
Life changes dramatically when the
family faces the truth and seeks treatment.
“Finally we decided to take my
aunt’s suggestion and he was shown
to a psychiatrist,” says Sheela,
Rohan’s daughter. “He was
diagnosed with schizophrenia. He was
reluctant to take medication, but eventually
started doing so. His symptoms reduced
drastically, and he was more functioning
as an individual.”
After years of turmoil, Rohan was employed
again and able to participate in family
life. Says Sheela, “Today at 62,
he is a grandfather of six children,
has three children of his own who are
happily settled with their spouses.
He works full time as civil engineer,
travels, socializes and is happy. But
he needs to take his medication every
day. After my father started treatment
and we saw the improvement I felt why
did we wait so long to get him into
treatment?”
Mental health problems, along with
alcoholism and substance abuse, are
the secrets families keep hidden away,
but all these are treatable. For those
who are wary of venturing out into the
mainstream, hospitals and clinics catering
specifically to immigrants and physicians
who are culturally sensitive and can
speak their language are now available.
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“A lack
of awareness about mental illness and
the unwillingness to accept that a family
member has a mental health problem prevents
many people from accessing services,”
says Reshma R. Shah, a social worker
at the Asian Outreach Clinic of the
Queens Child Guidance Center in Elmhurst,
Queens. Mental hFree ,alth services
are also provided once a week at the
Indo-American Psychiatric Services at
Flushing Hospital in Queens, established
in 1999 by Dr. Seeth Vivek, Dr. Deenshaw
Bamji and Dr. Vinod Dhar.
The Asian Outreach Clinic, established
in 1993, offers family therapy, mental
health services and alcohol and substance
abuse services. The trained staff speaks
several South Asian languages including
Hindi, Gujarati, Punjabi and Bengali.
While there are Chinese, Korean, Filipino
and Latino clients, Shah says, “South
Asian cases are just increasing every
year. We have three full-time South
Asian social workers, and each one of
us must be having an average caseload
of about 35, anytime.”
According to Dr. Agnelo Diaz, a psychiatrist
at the clinic, the patients include
Chinese, Korean, Filipino and South
Asians. “We deal with mental health
and substance abuse and we serve both
children and adults. We see a variety
of problems, starting with behavior
problems, truancy, and parent-child
conflicts. The immigrant parents come
with certain set mind as to how the
child is to be raised, and the child
struggles with the world at home and
the world outside and it’s very
hard to draw a balance.” |
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There are often parental conflicts
with children, primarily teenagers,
who may sometimes run away from home
or get into the wrong company and parents
are not willing to compromise or understand
the child’s needs.
“We also see a lot of influx
in terms of domestic violence, both
the victims as well as the perpetuators,”
says Diaz. “It’s a positive
sign. It’s a step forward because
in the past domestic abuse stayed in
the closet. Now we are getting referrals
from courts for the batterers and the
victims. People are now coming into
the open and somehow they now have the
courage to take that first step of reporting.”
Often alcohol or substance abuse is
interlinked with depression and other
mental problems. Young Gurmeet was always
sad and depressed. He confided to the
caseworkers that he had nightmares and
flashbacks of scenes from the past,
of his alcoholic father drinking and
fighting with his mother. Although his
father has an order of protection against
him and was currently out of the house,
he was never out of mind for Gurmeet
who had visions of his father drinking,
beating up his mother and also beating
him. Counseling for him and his family
have got them into the process of healing.
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The clinic serves
clients with mental problems such as schizophrenia,
depression and bipolar disorders. The
troubled Sunita and Arif were both referred
to the Asian Outreach Clinic by their
schools and were finally able to get treatment.
Sunita was stabilized first with ongoing
therapy and medication. She was seen twice
a week for close monitoring. Eventually
her suicidal tendencies declined and she
started taking more interest in herself.
She was started with home instruction
and enrolled in a support group for girls. |
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“The family still had a hard
time accepting her mental illness and
kept minimizing it,” says Shah.
“We explained that they need
not feel guilty about it and the more
they verbalized their concerns it would
be helpful in treating her. The parents
started responding more, attended therapy
with her, were compliant with medication
and Sunita’s depression started
getting better.”
Now 17, Sunita is still in treatment,
but has contact with friends and is
no longer suicidal and is very much
aware of her symptoms. She is currently
facing new issues with her parents about
adjustment to the mainstream culture
and her South Asian culture, However
she is able to deal with the conflicts
better now and no longer thinks suicide
as an option. As for Arif, things are
looking up for him too.
At the clinic, he was diagnosed with
Attention Deficit Disorder or ADD. Says
Shah, “We asked the parents to
have him psychiatrically evaluated.
They were hesitant about it and said
that their child was not mad. We explained
to them that ADD did not mean he was
mad; he just had a problem focusing
due to some functioning in the brain.”
His parents were reluctant to put him
on medication, thinking he would get
addicted and that it would be harmful.
But after the school continued to complain,
so finally, the parents relented and
got him to see the doctor and start
medication.
Says Shah, “The child responded
beautifully. Also we used behavior modification
techniques with him, and he was responsive
to them. The complaints from the school
stopped and the parents were relieved
of the pressure at home and this child
scored very well in school.”
For families under stress, the first
step to a solution is picking up the
telephone. |
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